We cannot wait for 10 more years! - Please sign an appeal to the Home Minister of India to include Muscular Dystrophy in the Census 2011 sign now


Email: [email protected]
[email protected]

Honorable Shri. P. Chidambaram
The Home Minister of India
Ministry of Home Affairs
North Block
Central Secretariat
New Delhi -110001
Phone: 23092011, 23092161
Fax: 23093750, 23092763

Respected Sir,

Subject: Pleading to include Muscular Dystrophy as one of the types of disability in the Census 2011 questionnaire.

This representation is being made on behalf of hundreds and thousands of Muscular Dystrophy patients and parents in India. Muscular Dystrophy community in India remains marginalized and unheard even within the disability population for want of awareness and lack of an official data with the government/s and as well as civil society organizations. An empirical data gathered by Muscular Dystrophy Associations world wide mentions the occurrence of Muscular Dystrophy to be one in every 2000 children population; neither India nor any of its states has any data about it. However, on the same scale of 1:2000, if not more for the poor living conditions and lack of awareness, one could well imagine what could be the number of Muscular Dystrophy children in India with its 1.2 billion populations.

While the Duchenne Muscular Dystrophy (DMD) Children in developed countries could live up to 23-28 years of age, most often the DMD children in India die during 13-17. None of the clinical trials being in progress globally prefer to recruit patients from India.This could well be attributed to lack of official recognition to the disease along with many other reasons. As parents of muscular dystrophy patients, we are genuinely afraid that the absence of an official data on muscular dystrophy might constraint our access to cure that is to come in the near future. The forthcoming population census would be the best opportunity to enumerate muscular dystrophy patients since it would also provide the scope for correlating and analyzing the socio-economic conditions of the muscular dystrophy patients in India.

It is therefore, we hereby request the honorable minister to include Muscular Dystrophy as one of the types of disability listed within the questionnaire which is to be used for the population census commencing on 9th February, 2011.

This would surely help not only enumerating the Muscular Dystrophy Patients in India, but also provide a scope for accessing cure that is to come soon. Failing to include Muscular Dystrophy in the Census 2011 would make us wait for another 10 years until the next census and by the time we would have lost many children.

Hope the honorable minister would kindly appreciate our request and provide suitable orders to include Muscular Dystrophy as one of the types of disability in the forthcoming census 2011.

Look forward to your kind support and favorable actions in this regard.

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Latest Signatures

  • 11 January 2016450. Bsambasivarao Stevenson
    Two of my grand sons are suffering from DMD. The elder one aged 19 years is reading 2nd year Engineering in Aundra University,Visakhapatnam and the second one aged 14 years is reading in 9 th class. By god grace both have got admission in schools by mercy
  • 10 January 2016449. Jyotirmoi A
    I support this petition
  • 05 January 2016448. Ashish N
    I support this petition
  • 04 January 2016447. Seema Watkins
    I support this petition
  • 30 December 2015446. Siddharth A
    Please as a humble request Do it! When you have one such person suffering at your home You will come to know what pain it cause! Today when someone ask me by what my brother died and when i say due to muscular dystrophy. they reply me what is that and tha
  • 29 December 2015445. Ankur M
    I support this petition
  • 22 December 2015444. Daric K
    pls let this happen
  • 20 December 2015443. Cssingh Booth
    please do somthing ............
  • 17 December 2015442. Josh K
    I support this petition
  • 17 December 2015441. Ashwini Olson
    I support this petition
  • 15 December 2015440. Periyasamy P
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  • 13 December 2015439. Joyeeta B
    I support this petition
  • 13 December 2015438. Abhishek S
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  • 03 December 2015437. Kasthuri S
    I support this petition
  • 28 November 2015436. Amahaboob Batchasocot
    I support this petition
  • 24 November 2015435. Gowrisankar Fowler
    We cannot wait for 10 more years Email ID [email protected] /* */
  • 22 November 2015434. Mythili Clements
    I support this petition
  • 21 November 2015433. Ramaswamy Finley
    I support this petition
  • 18 November 2015432. Sathish K
    I support this petition
  • 14 November 2015431. Sripriya R
    I support this petition
  • 08 November 2015430. Manikanta Reddymv
    I support this petition
  • 08 November 2015429. Nprasanna K
    I support this petition
  • 05 November 2015428. Rajkumar M
    I support this petition
  • 04 November 2015427. Kumuda Hull
    I support this petition
  • 03 November 2015426. Nindrapavan Love
    My dear Minister do the needful for the NuroMuscular dystrophy patients . Day by day Patients were dying with their diseases. Email ID kcpmktg@gmail,com
  • 17 October 2015425. Aruna K
    I am a mother of child having DMD. Muscular dystropy is a severe NMD condition.
  • 14 October 2015424. Piyush T
    I support this petition

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Information

Brandy JohnstonBy:
Transport and infrastructureIn:
Petition target:
Home Minister of India

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