Transparency and Openness in Electronic Patient Records and Other Healthcare Information Technology Systems sign now

**** This petition is aimed at clinicians, hospital governance personnel and other healthcare stakeholders, including patients.

***** We, the undersigned, believe in transparency, accuracy, and accountability in scientific research, especially in matters related to healthcare.

We believe contractual nondisclosure clauses [1] that prohibit or restrain unfettered disclosure and dissemination of information about healthcare information technology problems related to bugs, design defects, suboptimal user interfaces, other factors that can adversely affect care, and the adverse events and near accidents these problems cause, are unethical.

We believe that patients and clinicians have a right to knowledge of healthcare information technology problems and defects that can distract clinicians and/or reduce clinician effectiveness and productivity. We also believe that hospital governance personnel have the fiduciary responsibility as well as obligation under Joint Commission safety standards to protect patients, clinicians and others working within and for their organizations from the potential consequences of healthcare information technology problems [2].

We believe that only through transparency about healthcare information technology can medical ethics be maintained, the rights of patients to the best possible care be protected and medical science advanced.

Therefore, we call for such clauses to be refused by governance bodies, vendors of healthcare information technology to refrain from including such clauses in their contracts, and the U.S. Congress to prohibit nondisclosure clauses related to medical devices and healthcare information technology.

Furthermore, retaliatory actions against those who in good faith report such matters or incidents should be prohibited.

[1] Koppel R, Kreda D. Health Care Information Technology Vendors' "Hold Harmless" Clause: Implications for Patients and Clinicians, JAMA. 2009;301(12):1276-1278.

[2] Silverstein S. "Health Care Information Technology, Hospital Responsibilities, and Joint Commission Standards." Letter to the Editor, JAMA. 2009; 302: 382.

****** As an example of the problems these nondisclosure clauses can create, see http://hcrenewal.blogspot.com/2009/12/we-are-unable-to-share-documents.html . *** The signed petition will be sent to the U.S. Senate Finance Committee (currently investigating healthcare IT), the Secretary of HHS, the Director of AHRQ, the Director of the Office of the National Coordinator for Health IT, and the President of the Joint Commission.

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Latest Signatures

  • 28 December 201022. William
  • 27 December 201021. Anthony
    I was denied paymnent for a dental proceedure from Guardian Ins. which 2 dentists claim as a legal contractual proceedure. Guardian said.. appeal it to E.R.I.S.A. ERISA said...we don,t get involved with municipal plans. The State of CT. Insurance Comm. sa
  • 21 December 201020. Roy
  • 21 December 201019. Paul
  • 20 December 201018. david
  • 19 December 201017. Aubrey
  • 17 December 201016. Alexis
    I agree wholeheartedly.
  • 17 December 201015. Anne
  • 17 December 201014. Eric
    More needs to be done to protect workers who, in good faith, report potential problems.
  • 16 December 201013. Melody
  • 16 December 201012. Brian
    At least establish a strong office of Ombudsman for health IT.
  • 16 December 201011. Andrew
  • 16 December 201010. Steven
  • 16 December 20109. Peter
    We hope our senator, Tom Carper, will pay close attention to this issue.
  • 16 December 20108. John
    How sad it is that it EVER came to this.
  • 15 December 20107. dean
    The magnitude of the dangers of CPOE is not known and remains hidden because of the contracts and deals between vendor and hospital.
  • 15 December 20106. S
  • 15 December 20105. Phillip
    Humans will fail to be adaptive without evaluative systems made possible by truth / transparency. We need accurate knowledge to distribute our territorial resources to the needs of our species and our home planet.
  • 15 December 20104. Jane
  • 15 December 20103. Benjamin
  • 12 January 20102. jon
  • 06 January 20101. Bruce

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And, Electronic, healthcare, information, Openness, other, Patient, Records, systems, Technology, Transparency

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