The New York State Petition To Stop Lyme Disease sign now


Fact: Dutchess County is now one of the three highest counties in the United States in per capita Lyme cases, as Rep. John Hall, former County Legislator Bill McCabe, and many others have pointed out (LymeDiseaseAssociation.org).

Fact: "Lyme disease patients' lack of insurance coverage leads to limited courses of antibiotics, often not effective in eradicating the Lyme bacterium, which has the ability to hide inside cells, kill human lymphocytes and certain B cells, and to change into other forms." (LymeDiseaseAssociation.org)

Sign on to this petition and call state legislators at (877) 255-9417 if you agree with the following four points (inspired by the folks @ UnderOurSkin.com, ILADS.org, and LymeDiseaseAssociation.org):

1. Doctors here in Dutchess County and across New York State who properly treat chronic Lyme disease sufferers with more than four weeks of antibiotics should not be harassed, discriminated against, or punished. Rhode Island, Connecticut, and California have all sensibly passed legislation to protect doctors who treat chronic Lyme disease sufferers, ensuring that treating doctors cannot be prosecuted for unprofessional conduct solely for providing long-term treatment based on clinical judgment-- it's time for our state to finally follow suit.

2. New York State legislators should pass and our Governor should sign into law A.2100, legislation requiring health insurers to provide coverage for long-term medical care for Lyme disease and other tick-borne pathogens. Rhode Island and Connecticut have also passed legislation requiring insurance companies to cover patients for chronic Lyme disease treatment (I even got a resolution passed on this here in the Dutchess County Legislature last year-- with widespread bipartisan support for this as well-- but the state continues to fail to act; see Assembly.state.ny.us/leg/?bn=A2100). It's time for New York.

3. The Infectious Diseases Society of America should recommend more than four weeks of antibiotics to treat chronic Lyme disease, allow chronic Lyme disease doctors to be members on the current guidelines review panel of the IDSA, and fully abide by all of the terms of the Connecticut Attorney General's antitrust Settlement Agreement (including eliminating all financial conflicts of interest).

4. A new Hudson Valley Lyme Disease Task Force should be created to effectively press for no further delay on action on the three points above-- consisting of county legislators, state legislators, Lyme disease experts, and chronic Lyme disease sufferers from Dutchess, Ulster, Putnam, Orange, Columbia, Greene, Westchester, and Rockland counties-- issue is too important for this not to happen.

Also-- email all 25 of us in the Dutchess County Legislature for this brand-new resolution below from yours truly (submitted Mar. 21st to Co. Leg. offices) to be passed as soon as possible-- and speak up (bring signs too!) for its passage Mon. Apr. 12th and Mon. May 10th at 7 pm during the next two full board meetings of our County Legislature-- on the sixth floor of our County Office Building at 22 Market Street in Poughkeepsie.

Pass it on-- if you don't want to wait until 2525 for the action we need now on this(!).

Joel Tyner
County Legislator
Clinton/Rhinebeck
324 Browns Pond Road
Staatsburg, NY 12580
Host of "The Real Majority Project" Fridays 5-6 pm on WVKR 91.3 FM
Host of "Common Sense" Saturdays 8-10 am on WHVW 950 AM
Host of DutchessDemocracy.blogspot.com
[email protected]
(845) 876-2488

p.s. Must-read: 12/2/09 testimony of Patricia Smith President of the Lyme Disease Association before the Pennsylvanioa House Majority Policy CommitteeHearing on Combating Lyme Disease Dec. 2, 2009 in Worcester, PA-- go to this link:
www.LymeDiseaseAssociation.org/Testimony20091202.pdf.

p.p.s. There's no reason Congress can't push IDSA to do right thing on this too-- call Schumer, Gillibrand, Murphy, Hall, Hinchey, et. al. on this toll-free-- at (800) 828-0498!

p.p.p.s. Re: pro-active/preventive aspect of Lyme disease-- join over seventy other Dutchess County residents signed on to my PetitionOnline.com/SaveLand effort if you agree with Dr. Rick Ostfeld of the Cary Institute of Ecosystem Studies on the relationship between overdevelopment in Dutchess County and spiking Lyme/tick disease rates. Ostfeld just spoke March 7th in Millbrook about how Dutchess County residents are now literally five times more likely to encounter a Lyme disease-bearing tick in a small woodlot than in a large state forest; diverse animal populations minimize our exposure to diseases like Lyme; current threats to biodiversity include habitat loss, the movement of invasive species, and climate change (also see 350.org).

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[again-- email all 25 of us in Dutchess at [email protected] for action on this now!]

WHEREAS, Dutchess County is now one of the three highest counties in the United States in per capita Lyme cases; Lyme disease patients' lack of insurance coverage leads to limited courses of antibiotics, often not effective in eradicating the Lyme bacterium, which has the ability to hide inside cells, kill human lymphocytes and certain B cells, and to change into other forms, and

WHEREAS, despite the Center for Disease Control's warning that the CDC's surveillance criteria are not intended for diagnosis, treatment, or insurance reimbursement, but are only intended for
disease surveillance reporting, far too many doctors inappropriately use them to diagnose and treat and insurance companies are using them to deny treatment reimbursement, and

WHEREAS, the Infectious Diseases Society of America (IDSA)'s Lyme treatment guidelines currently recommend against any long-term treatment for chronic Lyme; against entire classes of antibiotics; against alternative treatments; against some supplements; and against individual physician discretion in diagnosis and treatment; according to the IDSA, chronic Lyme disease doesn't even exist, and

WHEREAS, abuse of these guidelines has been so blatant that Connecticut State Attorney General Richard Blumenthal initiated an investigation of the IDSA Guidelines' development process; he found "undisclosed financial interests held by several of the most powerful IDSA panelists", and

WHEREAS, according to the Lyme Disease Association, despite the IDSA's disclaimer that its guidelines are not mandatory, actual experiences demonstrate these guidelines have become de facto law; medical boards, health departments, hospitals, insurers, schools, pharmacists, and IDSA doctors themselves often hold that position, leading to doctor prosecution and inability of patients to get needed medical care for Lyme disease, and

WHEREAS, according to the Lyme Disease Association, doctors who don't follow IDSA guidelines but use their own clinical skills to diagnose and treat face medical board discipline, hospital privilege/post revocation, and insurance plan exclusion if they do not march lockstep with IDSA, creating a chilled treatment climate, to the detriment of Lyme disease sufferers, and

WHEREAS, Rhode Island, Connecticut, and California have all passed legislation to protect doctors who treat chronic Lyme disease sufferers, ensuring that treating doctors cannot be prosecuted for
unprofessional conduct solely for providing long-term treatment based on clinical judgment, and

WHEREAS, Rhode Island and Connecticut have also passed legislation requiring insurance companies to cover patients for chronic Lyme disease treatment, and therefore be it

RESOLVED, that the Dutchess County Legislature calls on our Governor and state legislators, our state's Department of Health, our state's Board for Medicine, our state's Board for Professional Misconduct, our county's Department of Health, our county's Board of Health, and our county's Medical Society to work together to make sure that doctors who properly treat chronic Lyme disease sufferers with more than four weeks of antibiotics are not harassed, discriminated against, or punished, and

RESOLVED, that the Dutchess County Legislature calls on our Governor and state legislators to pass and sign into law A.2100, legislation requiring health insurers to provide coverage for long-term medical care for Lyme disease and other tick-borne pathogens, and be it further

RESOLVED, that the Dutchess County Legislature calls on the Infectious Diseases Society of America to recommend more than four weeks of antibiotics to treat chronic Lyme disease, allow chronic Lyme disease doctors to be members on the current guidelines review panel of the IDSA, and fully abide by the terms of the Connecticut Attorney General's antitrust Settlement Agreement, and be it further

RESOLVED, that the Dutchess County Legislature calls for the creation of a new Hudson Valley Lyme Disease Task Force of county legislators, state legislators, Lyme disease experts, and chronic Lyme disease sufferers from Dutchess, Ulster, Putnam, Orange, Columbia, Greene, Westchester, and Rockland counties, and be it further

RESOLVED, that a copy of this resolution be sent to the Infectious Diseases Society of America, our Governor, state legislators, our state's Department of Health, our state's Board for Medicine, our state's Board for Professional Misconduct, our county's Department of Health, our county's Board of Health, our county's Medical Society, and the County Legislatures of Ulster, Putnam, Orange, Columbia, Greene, Westchester, and Rockland counties.

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Latest Signatures

  • 22 December 2015450. Marion L
    stop lyme disease Address; Zip Code 47 washington blvd commack ny 11725
  • 21 December 2015449. Lorita Kw
    A shame on the insuarance companies for their refusal to continue to pay for patient care who is certain an illness will be cured in 28 days? Address; Zip Code 12571
  • 11 December 2015448. Douglas Ab
    Living in the country, I fear this disease daily! I may have Lyme Disease now and dont know it, my insurance sure wont cover the cost for testing or treatment. Address; Zip Code Chemung,New York 14825
  • 04 December 2015447. Ingrid S
    This is an important issue Address; Zip Code 12438
  • 04 December 2015446. Kelly M
    Please help to insure all those that need the long term treatment for Lyme disease. Address; Zip Code 1204 Rockport Court East Greenbush, 12061
  • 28 November 2015445. K C
    Wake up, people in charge. It's time to take Lyme Disease seriously. Address; Zip Code Hyde Park, NY
  • 22 November 2015444. Kacie V
    Lyme is devastating. We need to do everything to stop this epidemic! Address; Zip Code 6 Susie Blvd., 12603
  • 15 November 2015443. Elizabeth B
    We need to prevent all tickborn illnesses! Address; Zip Code 36 Dale Rd, Hopewell Jct NY 12533
  • 09 November 2015442. Jessica K
    There should be yearly testing for children at their physicals. Doctors in this area should be better educated. Treatment, research and testing need to be funded by the goverment. How much money went to West Nile? How long do people need to suffer? Doctor
  • 02 November 2015441. Thomas Gc
    recognize this disease now Address; Zip Code 23 corning st apt2 albany ny 12205
  • 30 October 2015440. Ryan D
    Lyme Disease needs to be taken more serious by physcians Address; Zip Code 10969
  • 26 October 2015439. Gloria C
    you have no idea what Lyme Disease does to a person,I know because my 16 year old grand-daughter suffers everyday and misses alot of school and also misses alot of fun with family and friends,no one should suffer like this,not even mentioning the high cos
  • 21 October 2015438. Doreen T
    Treatment should be decided by doctor and patient, not insurance company Address; Zip Code 29 Colburn Drive Pok NY 12603
  • 19 October 2015437. Joan B
    The medical community needs to come together and use ILADS guidelines Address; Zip Code 138 Honeywell Lane,Hyde Park, NY
  • 29 September 2015436. Christine H
    Medical professionals are not trained correctly. Address; Zip Code 10940
  • 25 September 2015435. Kara S
    None Address; Zip Code 49 Riverdale Dr., Wingdale, NY 12594
  • 12 September 2015434. Jennifer H
    My entire family has Lyme and is alive due to extended antibiotic treatment!! Address; Zip Code 1909 Huntridge Drive, Clifton Park,NY 12065
  • 08 September 2015433. Lilith B
    PLease consider this urgent matter that has been sadly neglected Address; Zip Code 11215
  • 08 September 2015432. Beth Cm
    eradicate Lyme! Address; Zip Code 3 marcella blvd.Hopewell Jct., NY 12533
  • 04 September 2015431. Emmett H
    Do it now! Address; Zip Code 57 Southdown Road Huntington, NY 11743
  • 03 September 2015430. Carl L
    This disease needs to be taken seriously. Too many people are suffering without even receiving acknowledgement that their disease is real. Address; Zip Code 12480
  • 29 August 2015429. Jennifer K
    X Address; Zip Code 10598
  • 26 August 2015428. Justin J
    Fight lyme disease Address; Zip Code 64 St. Mark Pl #8, NY, NY 10003
  • 21 August 2015427. Timothy Ms
    It's time to open our eyes to this disease Address; Zip Code 250 West 77th St New York, N.Y.19924
  • 19 August 2015426. Julie J
    Please Do More for any one with this Horriable Disease Address; Zip Code 103 Johnson Hollow Rd. Fleischmanns NY 12430
  • 18 August 2015425. Mary C
    Find a cure and make vaccines available for all tick borne diseases Address; Zip Code 12533
  • 13 August 2015424. Norma R
    I had my first tick bite, ever, in early April of this year! Address; Zip Code 117 North Cross Road, Lagrangeville, NY 12540

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Information

Keisha MercadoBy:
Transport and infrastructureIn:
Petition target:
New York State residents

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