Support for a Manchester City fan & Charity sign now

I will like to call on all Manchester City fans for support, a fellow City fan who suffers from a rapid muscle wasting disease is currently continuing a never ending fight for survival.

Many others on this huge globe we call Earth suffer from the same or Similar life threatening disease's, obviously we can not help everyone but we do have the chance to help one of our own, a fellow City fan in need.

I do this Voluntary & without any real Personnal reason. I met Carl on a Manchester City forum named "Vital Manchester City", i have stood in the Dugout getting to know the community through observation & gradually integrated into the Vital Manchester City forum community.

I first made contact with Carl properly 1 day ago after talking with the Administrator of Vital Manchester City, my plan was to help Carl & the Community in some way or another.

3 days ago i read an Article about an Ex Milan football player suffering from ALS (Amyotrophic Lateral Sclerosis), he managed to organised a game between Milan and Fiorentina, which will benefit his ASL foundation.
The story that Borgonovo has to tell has captured the attention of the football world, with Italy's Gianluigi Buffon and Fabio Cannavaro taking notice.

Well my intention is to make it aware to Manchester City FC that we have a very special fan in need of support so without further ramblings i would like to ask for your support.

I believe with enough signatures we may just be able to get Carl & the Charity some real solid support.

I a 32 year old lifelong Manchester City fan ask Manchester City FC to show support for a City fan in need, with enough support from our Fellow City fans we hope it will make a difference when this petition reaches Manchester City FC...

I attach all relevent information about Carl, his affliction & the Charity.


Whats Duchenne Muscular Dystrophy?

Duchenne Muscular dystrophy is the most severe form of muscular dystrophy and it affects mainly the male population; its a rapid muscle wasting disease, progressive deterioration of muscle throughout the body with a life expectancy of 18 - 20 years. Boys are in wheelchairs by age 10 and eventually die by respiratory problems and heart failure.

There is yet no known cure for this relentless condition and the only treatment available is the use of a ventilator, medication for the heart and steroids (which can come with bad side effects).

Duchenne Muscular dystrophy was first discovered in the 1860s and was named after the French neurologist Guillaume Benjamin Amand Duchenne (1806-1875). Duchenne was identified clinically over 100 years ago but the structure of the gene that is responsible for Duchenne was only discovered in 1987 by Luis Kunkel, Tony Monaco, Kay Davies, Eric Hoffman and others.

Researchers and scientists have been doing years of trying to find a cure/treatment, they are succeeding and there are treatment in the pipeline but to save this generation of young people we need to raise the awareness urgently and carry on the funding, the government are not funding us nearly enough!

About the Petition

A petition was created by Carl Tilson who is living with Duchenne Muscular Dystrophy at the young age of 21 years old; the petition was created on behalf of the Charity Action Duchenne whose goal is to defeat this horrifying illness through campaigning and funding into research, there aim is to get a cure or at least a treatment to improve the quality of life.

The petition received over a thousand (2,193) signatures and finished on 18 May 2008 and then the government replied.

About Carl

My name is Carl Dean Tilson; Im a 21 year old young man who lives with the muscle wasting illness Duchenne Muscular Dystrophy. I was diagnosed at age 5 years old by having a muscle biopsy, due to not being able to keep up with the other children and falling over more often! Living with the disease for 20 years Im into the later stages of the condition where Im in a wheelchair permanent, on a ventilator over night and sometimes in the daytime, also I have to be fed by tube because my throat muscles have gone weaker, so if I ate it would be dangerous because it could fall into my lungs and cause a deadly chest infection (this problem depresses me the most because food is one of lifes pleasures). I face difficulties everyday with the face of death staring at me wherever I turn but I try and stay positive and hope for a treatment soon!

Id like to mention my granddad Fred Tilson played for Manchester City Football Club and England, hes most famous for helping City win the 1934 FA Cup, scoring two goals against Portsmouth! Also hes in the Manchester City Hall of Fame. My father had dreams and ambitions of me becoming a footballer like my granddad but unfortunately that would never happen.

I would have loved to carry on my granddads legacy playing football for Manchester City and causing havoc for defenders!

Charity - Action Duchenne

A Charity founded in July 2001, set up and run by parents and supporters of boys with Duchenne Muscular Dystrophy, The objects of the Charity are "The relief of persons with Duchenne Muscular Dystrophy through such means as are Charitable by law" Action Duchenne Ltd was established as a limited company by guarantee not having share capital in 2003.

Duchenne Muscular Dystrophy (DMD) is a heartbreaking disease. Children begin to see their muscles waste away and families struggle to cope with the diagnosis and day to day management of this condition. Young men die early in late teens or are left wheelchair bound and unable to move unaided. The hope for families lies in new treatments that can slow or stop DMD in its tracks.

Action Duchenne is the only national Charity that exclusively funds research for a cure and promotes campaigns for better medical care for Duchenne Muscular Dystrophy.

I started to work voluntary with Action Duchenne because I became very ill and had to give up College and after I got much better, I missed that much of College, I decided that I wouldnt return because there was too much catch up for me so I decided to help Action Duchenne campaign to help defeat Duchenne Muscular Dystrophy.

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Goal reached !
1000 / 1000

Latest Signatures

  • 15 February 20161000. Barry Ray
    I support this petition
  • 13 February 2016999. Steve L
    I support this petition
  • 09 February 2016998. Paul S
    I support this petition
  • 07 February 2016997. Lauren M
    I support this petition
  • 05 February 2016996. Joseph F
    I support this petition
  • 29 January 2016995. Zoe R
    I support this petition
  • 27 January 2016994. Wayne Arnold
    I support this petition
  • 25 January 2016993. Neil E
    my friends son has DMD, of a similar age. my thoughts are with you, hope it helps.
  • 22 January 2016992. Brent N
    I support this petition
  • 21 January 2016991. Paul H
    В
  • 13 January 2016990. S M
    I support this petition
  • 12 January 2016989. John R
    I support this petition
  • 11 January 2016988. David B
    В
  • 11 January 2016987. S Tw
    I support this petition
  • 03 January 2016986. Jill M
    I support this petition
  • 01 January 2016985. Kelly B
    I support this petition
  • 31 December 2015984. A H
    I support this petition
  • 26 December 2015983. Alex B
    I support this petition
  • 26 December 2015982. Paul Matthews
    В
  • 25 December 2015981. Suzanne S
    I support this petition
  • 22 December 2015980. Suey R
    up the blues- and all the best to you Carl
  • 20 December 2015979. Michele T
    I support this petition
  • 20 December 2015978. David C
    A worthy cause, well done with the petition.
  • 14 December 2015977. Mark Masonakabluesuedes
    Full support all the way!
  • 11 December 2015976. Keely S
    I support this petition
  • 07 December 2015975. Rozzi Harris
    All the best with this quest....
  • 06 December 2015974. Margaret S
    A great charity to support!

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Information

Marina OconnellBy:
Politics and GovernmentIn:
Petition target:
Manchester City FC Supporters

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