Newborn Screening For Krabbe Disease sign now

How far would you go to save a child's life? You can start here with signing this petition for Newborn Sreening for the genetic disease Krabbe. Krabbe is a gentic disease also known as globoid cell leukodystrophy is normally fatal before the age of two and has a average rate of death of 13 months.Krabbe is an inherited,progressive,non-selective disorder that effects the brain,spinal cord and peripheral nerves.1 in 125 people are carriers of krabbe.It is passed by both mother and father.It is not determined by gender.Any children conceived by carrier parents have a chance of being affected.One in 40,000 children in the United States are afflicted with krabbe disease.Yet awareness about this disease is very limited. Until recently the only treatment options were limited to symptom management and palliative care.Now,a new and revolutionary treatment,Cord Blood Transplant,is saving the lives of many sick,young children and babies.Early diagnosis is imperative.Since krabbe disease hits early,and is quickly fatal it is critically important that a diagnosis be made promptly at birth.We have to make Newborn Screening a must for krabbe disease and give our children a bright and shiney chance for the future.

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Latest Signatures

  • 04 January 2016441. Jennifer A
    May this petition save many lives!
  • 01 January 2016440. Tony Lf
    I support this petition
  • 26 December 2015439. Angie C
    I support this petition
  • 16 December 2015438. Derek G
    God Bless Candace
  • 05 December 2015437. Maryann M
    I support this petition
  • 04 December 2015436. Nancy S
    I support this petition
  • 09 November 2015435. Travis B
    I support this petition
  • 06 November 2015434. Netty C
    I support this petition
  • 03 November 2015433. Ed T
    I support this petition
  • 02 November 2015432. Donna G
    please help us!
  • 28 October 2015431. Amanda L
    I'M SO SORRY TO HEAR ABOUT YOUR LOSS,I HOPE THIS HELPS TO REMEMBER YOUR ANGEL.
  • 28 October 2015430. Pam M
    I support this petition
  • 25 September 2015429. Mandy Ryan
    PLEASE ALLOW THIS TESTING TO SAVE 1 CHILD IS WELL WORTH IT
  • 24 September 2015428. Rebecca S
    I support this petition
  • 16 September 2015427. Bill S
    I support this petition
  • 09 September 2015426. Heather H
    I support this petition
  • 12 August 2015425. Cyndy W
    I support this petition
  • 03 August 2015424. Erika C
    it's long overdue.
  • 09 July 2015423. Michelle H
    Please pass!
  • 25 June 2015422. Raelene B
    I support this petition
  • 20 June 2015421. April E
    I support this petition
  • 09 June 2015420. Racquel W
    I support this petition
  • 01 June 2015419. Peggy T
    I support this petition
  • 12 May 2015418. Jessica P
    I support this petition
  • 06 May 2015417. George N
    Hopefully this will help
  • 09 April 2015416. Chris C
    lets help save krabbe babies lives
  • 30 March 2015415. Angela J
    Help prevent this from happening to our kids

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Information

Marion CameronBy:
Transport and infrastructureIn:
Petition target:
U.S. Congress and Mississippi Senate

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