Joey's Life sign now

Dear Swindon and Marlbrough NHS Trust,

I wanted to write to you to let you know that as well as the number 318190, I am also a person too, something you may forget when you sit in your big office and discuss the daily budget or the dress code or whatever it is that you discuss in those big offices that the taxes people pay you to have. I wanted to write to you to see if maybe knowing me, made you sleep any less better at night.

I am not many things anymore, but what I am is more important to me than anything else in the world so bear with me while I tell you why I bothered to waste what little energy I have left on writing this letter to the only people who could have helped me but never really saw the point.

My name is Joanne Elizabeth Paul, people call me 'Joey'. I am 24 years of age. I'm a daughter to three wonderful parents. I'm a sister to one big brother. I'm a niece, a grandaughter, a cousin. I'm a godmother to a beautiful child, named Darla, I'm also her fake aunt. I'm a writer of five and a half books. I'm a uni student, studying towards a degree in Sociolgy and Health Studies, trying to do it in three years, but I doubt, after today, whether I will manage it. I'm a sufferer of type one brittle asthma for seventeen years - I'm trying for twenty years since no one I know has ever made it past ten, but don't worry, after today, I'm sure that dream is crushed. I'm a sufferer of Myalgic Encephalopathy, you'll know it as M.E. I'm a sufferer of Fibromyalgia. I'm disabled. I'm also dying, but you already knew that, didn't you?

Today, 27th October 2006, you did the final thing to seal a nail in my coffin, you pulled my care team and my funding. I could ask you why, I could plead with you to put it back the way it was, but after dealing with you for the past eight years since I turned sixteen years old, I know how you work. I begged with you to believe I had something wrong with me for a long time six years ago, you turned me away, I had M.E and Fibromyalgia. I begged you to let me try the bricanyl when I was eighteen, you turned me away, you cost me years of life. I begged you for morphine for the pain, you turned me away, you made me live in pain for over a year to satisfy your curiosity. I begged you for the new drug that was working miracles for many of severe asthmatics across the world, you turned me down, you said you had made me as "comfortable" as you could, you didn't care that you were throwing away the best parts of my life, the time I had left, the ONLY time I had left to prepare my parents, my friends, my family, the people I LOVED, that no matter what my doctor did there was no way he could save me - not because of his mistakes, or his errors or the lack of advances of medical research - it was because of all of you. You sat there, read my file and made a judgement, a quick one after a read of the budget for the short term - not the long term. You didn't see if by making a big spend now you could save my life in the long term, no, you never cared enough.

And why should you? It was only my life you were dealing with. Why should the life of a twenty-four year old women mean anything? It doesn't, y'know? MEAN anything, you made sure that I will die a slow, painful death sooner than I should, leaving behind the ones I love before I should.

It was only a life..

...just my life...

...and soon it'll be over, just thought I would share that with you.

Sleep well tonight.

Joanne 'Joey' Paul

We, the Undersigned, agree that the funding should be givin back to, Miss Joanne Paul, for her to recieve the care she needs for hr brittle asthma, M.E. and Fibromyalgia. A care team that consists of a competent Consultant, a Respiratory Nurse and a local GP.

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Goal reached !
200 / 100

Latest Signatures

  • 19 December 2015200. Kara F
    I support this petition
  • 07 November 2015199. Anna Andemmam
    This girl has a RIGHT to live. Life is not a favor for bureaucrats to grant or take. Your actions in removing Joanne Paul's care team and lifesaving medications equate to murder.
  • 04 November 2015198. Rachel H
    This is truely a disgusting situation for anybody to be in. I hope that the people involved with this travesty are affected greatly by this petition. Within their jobs and within their conscience.
  • 18 October 2015197. Clarissa L
    I support this petition
  • 06 October 2015196. Julianna Thomas
    I support this petition
  • 05 October 2015195. Geina M
    I support this petition
  • 26 September 2015194. Renee G
    No human being should ever be denied the health care they need to live, and it is your responsibility as government officials to uphold this principal. Who knows, it could be you or your daughter someday.
  • 13 September 2015193. Alan S
    I support this petition
  • 13 September 2015192. Rachelle S
    I support this petition
  • 31 August 2015191. Chris C
    I support this petition
  • 28 August 2015190. Maria Helenf
    I support this petition
  • 20 August 2015189. Katherine S
    I support this petition
  • 08 August 2015188. Christine R
    I support this petition
  • 05 August 2015187. Laura C
    I support this petition
  • 02 August 2015186. Danica J
    I support this petition
  • 11 July 2015185. Harriet M
    I support this petition
  • 06 July 2015184. Jamie L
    I support this petition
  • 29 June 2015183. Lorena J
    If you have a heart, you'll help Joey!
  • 25 June 2015182. Stephen Jhw
  • 05 June 2015181. Flora B
    please try to do something to prolong this poor woman's life - it's inhuman that she should have to leave her family that soon in life
  • 12 May 2015180. Cheryl G
    I support this petition
  • 12 May 2015179. Erin B
    I support this petition
  • 06 May 2015178. Beverley C
    I support this petition
  • 28 April 2015177. Lucy R
    I support this petition
  • 18 March 2015176. Maria R
    For once do what is human not just money.
  • 11 March 2015175. Josh Rodriguez
    I support this petition
  • 10 December 2014174. Tracy Francoeurh
    Do you need to have this happen to you and yours to understand and do the right thing?! Then so be it.

browse all the signatures


Penelope BauerBy:
Petition target:
Swindon and Marlbrough NHS Trust


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