Help Ivy Lead A Normal Life sign now

Ivy is beautiful and Ivy is sick. Ivy is only 2.

And yet, at age 2, Ivy has seen the inside of a hospital more times than anyone should have to. Ivy has a rare immune deficiency IgG. Because of that, she has Pemphigus which is an autoimmune response to the IgG [please note, these are photos of Ivy's pemphigus blisters and they may be a little graphic for some people].

These are horrible conditions that no adult should have to deal with, let alone a child.

Ivy is currently on Prednisone and Mycophenolate to help control her symptoms and blistering; however, these drugs suppress her immune system, on top of the deficiency.

Ivy's mum says "...she was never good at mounting a response to infection but the meds make it worse."

She frequently ends up in hospital on IV antibiotics, just to help control the infection in her ears that never seems to completely disappear. She cannot be exposed to a simple virus in fear that it will land her back in hospital for days at a time.

She can't go to the playground to play.

She can't attend playgroup.

She can't head to the supermarket with her mother.

She might never be able to go to regular school.

She is only 2.

However, there is a treatment that would give Ivy a good chance at normal life.

It's called IVIG (intravenous immunoglobulin) and it is a transfusion of immune cells that would bolster Ivy's own immune system and help her fight infections in a normal way.

Think about it, a chance at a normal life. A life that doesn't involve frequent hospitalisations.

Unfortunately, the officials at the Australian National Blood Authority have denied the request for Ivy to have this treatment. This treatment that could very well keep her out of hospital. So far, all appeals have been in vain.

As Ivy's Mum says on her website:

"My little girl is going to have a life of hospital admissions and illness, some chronic, some life threatening, because some guy in an ivory tower decided she could survive without this medication."

How is this fair?

What if it was your child? What if it was your sister's child? Do the rules change for daughters of the officials? How come someone with a big stamp gets to say yes or no to this little girl's chance at a normal life?

It shouldn't be like this.

All I am asking for is 2 minutes of your time. If you could just head over here and sign our petition, we might be able to get enough support to convince the National Blood Authority officials to change their mind.

Ivy is only 2. She deserves a chance to be normal.

Please, a minute of your time could make all the difference for Ivy.

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Goal reached !
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Latest Signatures

  • 07 January 20161000. Dina R
    Please help her State/Country Texas USA
  • 05 January 2016999. Angela H
    I support this petition
  • 04 January 2016998. Monica B
    Help Ivy! You do not know her pain unless you have endured it yourself. State/Country USA
  • 03 January 2016997. Hayley R
    В State/Country NSW Australia
  • 31 December 2015996. Patricia H
    I support this petition
  • 24 December 2015995. Cameron L
    I support this petition
  • 24 December 2015994. Susan S
    I support this petition
  • 23 December 2015993. Karen W
    please!! State/Country Victoria
  • 22 December 2015992. Chantelle D
    I support this petition
  • 16 December 2015991. Stephanie W
    I cannot even begin to understand why some guy in a pinstripe suit gets to say that this little girl shouldnt in so many words have a normal life... Give this 2 year a chance, what makes u play Devils Advocate? State/Country South Africa
  • 15 December 2015990. Michael Wtem
    In support of my grand daughter in Sydney who has food allergies associated with these disorders State/Country Lower Hutt - Wellington - New Zealand
  • 15 December 2015989. Michelle S
    Help Ivy Lead A Normal Life PLEASE. State/Country Queensland,Auatalia.
  • 14 December 2015988. Sinead O
    Please reconsider your decision and give Ivy a chance at a more normal life. State/Country SA, Australia
  • 13 December 2015987. Ed L
    As a healthcare professional it is disheartening to know that any child should be denied access to a procedure or medication that could potentially improve that child's quality of life. No child should have to suffer needlessly because of the callus disre
  • 10 December 2015986. Clarissa S
    I support this petition
  • 08 December 2015985. Charlotte F
    I support this petition
  • 06 December 2015984. Tanya K
    Pleeeease State/Country Tasmania
  • 05 December 2015983. Janelle G
    I support this petition
  • 29 November 2015982. Stacey C
    Please give little Ivy a chance! State/Country Missouri/United States of America
  • 24 November 2015981. Sharon B
    I support this petition
  • 21 November 2015980. Melinda H
    I support this petition
  • 20 November 2015979. Leanne W
    I support this petition
  • 20 November 2015978. Alissa D
    I support this petition
  • 16 November 2015977. Maureen D
    Please help this little girl get the treatments she so desperately needs. State/Country NY, USA
  • 13 November 2015976. Lindsey C
    I support this petition
  • 13 November 2015975. Jennifer V
    Please reconsider and give Ivy a normal life State/Country MN, USA
  • 12 November 2015974. Felicity M
    For goodness sake, give this little girl the operation!! What if it were YOUR daughter? State/Country WA

browse all the signatures

Information

Mandy SinghBy:
Transport and infrastructureIn:
Petition target:
Australian National Blood Authority

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