Dercum's Disease Research sign now

My name is Christina and I was recently diagnosed with Dercum's Disease, aka adiposis dolorosa, aka lipomatosis dolorosa. For anyone not familiar with Dercum's it is a rare, chronic and disabling disease that causes multiple painful fatty tumors to accumulate throughout the body. These tumors can attach themselves to nerves and create a great deal of pain. There are many other symptoms that accompany this disease including extreme fatigue, weakness, swelling of the hands, skeletal pain, concentration and memory problems, fibromyalgia type symptoms and weight gain. Most patients are misdiagnosed for years with other diseases or syndromes whose symptoms mimic Dercum's, and most often people go completely undiagnosed. Currently, there is no known cause, cure or effective treatment for Dercum's Disease. To further add to this tragedy, no medical research is being done in the United States and the medical community itself is very unfamiliar with it. All treatment attempted at relieving symptoms thus far have been in vain.

At this time I am asking that all people who are currently diagnosed with Dercum's Disease, as well as their loved ones, sign a petition to urge the medical community to begin research into this baffling disease. I am hoping to raise awareness and ultimately will contact the U.S. government about our plight. Thank you for your time and support.

Sign The Petition

Sign with Facebook
OR

If you already have an account please sign in, otherwise register an account for free then sign the petition filling the fields below.
Email and the password will be your account data, you will be able to sign other petitions after logging in.

Privacy in the search engines? You can use a nickname:

Attention, the email address you supply must be valid in order to validate the signature, otherwise it will be deleted.

I confirm registration and I agree to Usage and Limitations of Services

I confirm that I have read the Privacy Policy

I agree to the Personal Data Processing

Shoutbox

Who signed this petition saw these petitions too:

Sign The Petition

Sign with Facebook
OR

If you already have an account please sign in

Comment

I confirm registration and I agree to Usage and Limitations of Services

I confirm that I have read the Privacy Policy

I agree to the Personal Data Processing

Goal reached !
1000 / 1000

Latest Signatures

  • 13 February 20161000. Ken B
    I am the husband of # 79, Melinda Baker, I know this disease first hand. My wife and the world should have research and answers for this desease, I have watched my wife suffer, and we are so blessed to have a Army Doctor/Surgeon [I am retired Navy] who no
  • 13 February 2016999. Janet M
    I support this petition
  • 11 February 2016998. Janice L
    I support this petition
  • 09 February 2016997. Elizabeth P
    I support this petition
  • 09 February 2016996. Vivian A
    I support this petition
  • 09 February 2016995. Robert K
    i have a friend with the dercum's disease
  • 07 February 2016994. Robin K
    HELP US!!!!!!!!!!!!!!
  • 06 February 2016993. Judy B
    Hope they find a cure soon!
  • 04 February 2016992. Katy C
    I support this petition
  • 03 February 2016991. Jade B
    I have had four Lipoma removal surgeries. Each time they are removed more grow back. They are very painful, and for awahile i began to think i was going crazy. Though i have not been diagnosed this is something i am going to bring up to my doctor. He now
  • 28 January 2016990. Randall M
    I support this petition
  • 28 January 2016989. Cheryl E
    I support this petition
  • 28 January 2016988. Tina Lw
    God Bless
  • 28 January 2016987. Vickie K
    I also think we need some research and doctors that are knowledgeable on Dercum's Disease. It has taken my life away from me, my children and grandchildren with the pain and disablilities I have.
  • 27 January 2016986. Lindsay L
    I support this petition
  • 26 January 2016985. Ann D
    I support this petition
  • 18 January 2016984. Wendy H
    I have had DD for 5 yrs. and want it gone. I am 68 yrs old, had a terrible time finding out what I had. Dr. after Dr. was stumped and I did 100erd of test( all normal) before it was found. Now I spend my energy trying to figure out how to live with it. I
  • 17 January 2016983. Caitlin Campos
    I support this petition
  • 15 January 2016982. Elvirka Wong
    I support this petition
  • 12 January 2016981. Kathleen P
    I support this petition
  • 12 January 2016980. Virginia M
    I support this petition
  • 10 January 2016979. Antonia F
    i believe all will be well
  • 07 January 2016978. Beth R
    I support this petition
  • 06 January 2016977. Lisa B
    I support this petition
  • 03 January 2016976. Sharon H
    I support this petition
  • 02 January 2016975. Edward Dhogbins
    К
  • 01 January 2016974. Janet H
    I support this petition

browse all the signatures

Information

Manuel AcevedoBy:
International PolicyIn:
Petition target:
NORD; CDC; U.S. Congress

Tags

No tags

Share

Invite friends from your address book

Embed Codes

direct link

link for html

link for forum without title

link for forum with title

Widgets