Congenital Heart Defect Awareness Day sign now

On February 14th, 2004, families and professionals across the country will join together to celebrate Congenital Heart Defect Awareness Day. This day is set aside each year to honor families of children and adults with congenital heart defects and disease (CHDs) and the professionals who work with them, and to cherish the memory of lives lost,.

Currently, the issuance of proclamations for Congenital Heart Defect Awareness Day is limited to local and state governments. While the participation of these officials is greatly appreciated, a Presidential Proclamation would make an unprecedented impact on raising awareness about CHDs.

Raising national awareness about Congenital Heart Defects is important on many levelsit will provide hope for families of CHD survivors and comfort to those whose loved ones have lost their battles; it will inform the general public about the symptoms of CHDs and possibly save lives; and it will affirm the need for researchers and medical professionals to continue their work to improve the outlook for CHD patients.

While it is tempting to assume that proclaiming February as American Heart Association month also addresses the needs of CHD families and professionals, this is not so. The main purpose of the AHA is to fight acquired heart disease and strokes. Additionally, there is no mention of addressing the needs of Congenital Heart patients in their long-term goals. The causes and most treatments for CHDs are distinctly different from acquired heart disease. This is why adult CHD survivors continue to follow with pediatric cardiologists or those that specialize in adult congenital conditions.

Each year, an estimated 40,000 babies are born in the United States with a congenital heart defect; CHDs are the most common birth defect and the number one cause of death from birth defects during infancy. Nearly twice as many children die from congenital heart defects as from all childhood cancers combined, yet research for cancer receives five times the funding. This is due in large part to the lack of awareness most people have about congenital heart defects.

As parents of children affected by heart defects, adults with CHD, and the family members that support them, there is little we can do beyond loving them and getting them the best medical attention currently available. But by raising awareness, we can make a difference for future generations and find meaning in the challenges our children and adults face. As a parent, Im sure you can understand the significance of this. As a leader, you can catapult awareness of CHDs to the forefront of Americans minds by simply recognizing one day in February for CHD families and professionals.

Thank-you for your consideration of our request to grant a Presidential Proclamation for Congenital Heart Defect Awareness Day: February 14, 2004.

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Latest Signatures

  • 14 February 20161000. Heather W
    I support this petition
  • 13 February 2016999. Jane B
    God Bless Anthony - miracle boy
  • 12 February 2016998. Kathy D
    I support this petition
  • 07 February 2016997. Joe C
    I support this petition
  • 31 January 2016996. Janet Leem
    I support this petition
  • 26 January 2016995. Keri Lv
    I support this petition
  • 25 January 2016994. Patty Jensen
    I support this petition
  • 24 January 2016993. Deirdrescalise Lloyd
    My son Joseph was one of the 100 babies born last year with a CHD!!!
  • 22 January 2016992. Kathie W
    В
  • 18 January 2016991. Ivelisse R
    we need such a date!
  • 17 January 2016990. Eileenmumfiord Foley
    Please make this CHD Awareness Day happen, Don't let other parents and children go without information like my sister-in-law and brother-in-law(Jeanne and Ron Imperati) and nephew (Matt) had to when they found his heart problems when he was born
  • 31 December 2015989. Manuel Cosmej
    I love you Gracie!
  • 28 December 2015988. Debbie D
    I support this petition
  • 28 December 2015987. Paige Hopel
    I support this petition
  • 20 December 2015986. Shari F
    For Baby Dylan........
  • 18 December 2015985. J Kayg
    I support this petition
  • 17 December 2015984. Carrie H
    I support this petition
  • 16 December 2015983. Eric A
    I support this petition
  • 13 December 2015982. Cathie F
    In memory of Dylan Zachary
  • 11 December 2015981. Joy H
    Our lives have been extremely blessed by knowing our friend Shay who was born with a CHD. We pray for a long and healthy life for her and other children affected by CHD's.
  • 08 December 2015980. Leann G
    I support this petition
  • 02 December 2015979. Denise D
    Thank you
  • 27 November 2015978. Rebekah K
    I support this petition
  • 25 November 2015977. Robin J
    I support this petition
  • 20 November 2015976. Helen O
    Please consider this stronly, not only the child suffer but the parents as well, Mr. President take some time for issues like these, you are a parent!
  • 15 November 2015975. Joyce D
    Sammy is 2 now and still going. He needs your help. God bless us all.
  • 12 November 2015974. Amy S
    My brother has a heart defect.

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Information

Carl RayBy:
Culture and SocietyIn:
Petition target:
President George W. Bush

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