Call For Action Dystonia Awareness Month sign now

To the Entire Dystonia Community :
Did you know that the resources provided by the Department of Health and Human Services looks as if their list of National Health Observances for June (http://www.healthfinder.gov/nho/nho.asp#m6) does not include Dystonia Awareness Month. Do we really think that ONE week will bring about immense change in awareness. Think about it - 7 days versus 30 days.
WHY NOT ?? Call for Action...Set aside your group allegiances and let's ACT.
We are undermanned, underfunded, misunderstood, not united, full of personal agendas, and apparently our priorities need a bit of change. Sign the petition so that June can become DYSTONIA AWARENESS MONTH now.

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Goal reached !
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Latest Signatures

  • 29 December 201599. Steve H
    My 26 year old step daughter was just diagnosed with dystonia and prior to this we were completely unaware of dystonia. Though her muscle contractions are not as bad as some we've seen (yet) her life has changed dramatically. The general public has to bec
  • 28 December 201598. Jason D
    i've had dystonia almost 30! years! now!!!! and i feel like its been way over due to try to get the word out about it and get better treatments!
  • 09 December 201597. Cindy Bm
    I do hereby petion to Dept. of Health and Services-National Observance Disease Dept.
  • 09 November 201596. Anne B
    I support this petition
  • 06 November 201595. Elizabeth B
    I support this petition
  • 04 October 201594. Jenelle D
    I have had generalized tardive dystonia for 16 years. There are approximately 500,000 people with dystonia in North America. Please consider bringing more awareness to this devastating disorder.
  • 24 June 201593. Rebecca D
    I support this petition
  • 12 June 201592. Bill G
    I have had Dystonia for 52yrs
  • 09 June 201591. Anita K
    here a call for action from Holland!
  • 13 May 201590. Robert B
    I support this petition
  • 02 May 201589. Patricia F
    I support this petition
  • 09 February 201588. Debbie C
    Let's all stand together to have an awareness month!
  • 07 February 201587. Virginia B
    I support this petition
  • 10 January 201586. Pat W
    I support this petition
  • 23 October 201485. Erin J
    I support this petition
  • 09 May 201484. Fred B
    В
  • 14 March 201483. Wendi Chaney
    We really need a cure thank you!!!
  • 25 February 201482. Michele Z
    I support this petition
  • 22 January 201481. Mellissa D
    I have been diagnosed with Generalized Dystonia, causes much pain in my daily life though I keep going like the energizer bunny to live. Please consider setting time for those of us
  • 07 January 201480. Amanda T
    mom has dystonia trying to find a dr that knows what it is and what to do to help her! we have been searching for a knowledgeable dr since 8-81-10
  • 12 September 201379. Lori R
    I support this petition
  • 03 September 201378. Alice M
    Thank you Beka.
  • 30 March 201377. Paddy D
    Dystonia merits a much higher profile that it is given.
  • 27 January 201376. Teresa H
    I support this petition
  • 24 January 201375. Penny D
    Dystonia Awareness Month is A MUST!!!!
  • 10 October 201274. Carol P
    I'm from Australia and we no longer have a support network over here.
  • 30 June 201273. Jeanette M
    I support this petition

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Information

Marci MayoBy:
International PolicyIn:
Petition target:
Dept of Health and Services-National Observance Disease Dept.

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