Add Krabbe disease to newborn screening sign now


What if you could save a life of a child just by adding a test to the already tested for genetic diseases at birth (newborn screening).

This petition is to add Krabbe disease (globoid cell leukodystroy) to the list of genetic disease already tested for at birth (newborn screening).

Krabbe disease (globoid cell leukodystroy) is a terminal disease with a life expencancy of 8-16 months, with 80\% being babies most children do not make it to 2 years. There is a treatment now for Krabbe disease and this treatment has been successful in several Krabbe babies, this treatment gives our children hope for a future. However, only if diagnosed prior to symptoms can this treatment be successful. We must test our babies at birth so no other babies will have to die from Krabbe disease.

We are sending these signatures to the Provincial Government/Provincial Health Care system as well as the federal Government.

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Goal
550 / 1000

Latest Signatures

  • 23 December 2015550. Janie B
    PLEASE HELP SAVE THESE CHILDRENS LIVES!!!
  • 01 December 2015549. Meagan O
    I support this petition
  • 24 November 2015548. Oran M
    think this is a must!!!
  • 29 October 2015547. Patty H
    I support this petition
  • 24 October 2015546. Amanda Ramos
    I support this petition
  • 17 October 2015545. April B
    I support this petition
  • 02 October 2015544. William W
    I support this petition
  • 30 September 2015543. Jordon S
    I support this petition
  • 29 September 2015542. Blair K
    I support this petition
  • 14 September 2015541. Tracy M
    I support this petition
  • 04 September 2015540. Denise M
    I loved it so much it made me cry
  • 31 July 2015539. Sandra K
    I support this petition
  • 28 July 2015538. Sarah D
    I support this petition
  • 26 July 2015537. Brian Jg
    Please hear our plea and save babies and their families from the agony of this disease.
  • 13 July 2015536. Shawn D
    My girlfriend was linked to this petition by a seller she met through ebay who's daughter was taken from her by this disease. The symptoms sound horrible to live with and that alone, not to mention the possibility of death, is reason to test our infants.
  • 08 July 2015535. Eleanor B
    I support this petition
  • 06 July 2015534. Leanne H
    I support this petition
  • 04 July 2015533. Sharon Y
    I support this petition
  • 04 July 2015532. Rebecca Sj
    I support this petition
  • 28 June 2015531. Brian G
    "Just think about it ..it could involve your family one day"
  • 26 June 2015530. Jacqui L
    I support this petition
  • 21 June 2015529. Megan H
    I support this petition
  • 20 June 2015528. Mary Christinew
    I support this petition
  • 06 June 2015527. Diane Wesk
    without a doubt, this screening should be done at birth
  • 04 June 2015526. Minnie H
    Life Is Precious
  • 21 May 2015525. Tanya J
    I support this petition
  • 16 May 2015524. Angela J
    I support this petition

browse all the signatures

Information

Ivy LutzBy:
ReligionIn:
Petition target:
PARLIAMENT~Ottawa~

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