Pay Finnan Boonnak CDG1a Disability Living Allowance sign now

Finnan Boonnak has a rare genetic disease called CDG1a. He will never walk, he will have difficultly talking and if he is lucky, he may live into his 40s. There is no cure. He has just turned three.

In 2011 Finnan received higest level Disability Allowance. In August 2013, the family moved to Thailand for two years because Finnan's Mum had been seconded to a teaching position at her school's sister school in Bangkok. The family made the DWP aware of this.

Finnan was not discharged from UK hospitals as doctors were aware he would be returning. On his return in Junly 2013 he was immediately given a nursery place at a local special school.  

On April 8th, 3 months before the family returned home, the governament change the DLA rules for children, so that any child over the age of 3 was not entitled to benefit unless they had been resident in the UK for two of the last three years.

Finnan, who should be receiving highest level disability allowance and highest level mobility allowance, now finds himself denied.

He now has no access to any other services that DLA brings along with it.

Finnan's Mum works full time to provide for a family of 5, and is the only working person now Finnan has his Dad as his full time carer.

Finnan needs DLA for a good quality of life. The government promised that austerity cuts would not affect disabled children. But this was a lie.

Please sign this petition to support a severely disabled three year old boy, with a heart of gold and a smile to melt the coldest of politicians.

Your support is appreciated beyond all measure.

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Information

FinnanBy:
Justice, rights and public orderIn:
Petition target:
David Cameron, DWP

Petition community:
me, friends, colleagues, CDG community

Tags

boonnak, cantdogymnastics, cdg, cdg1a, dla, dwp, finnan

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